-
R
squeamish? feeding tube? yikes
Hi All It's been so long since I's posted here. My husband is coming upon his 2 year "diagnosis" anniversary and we are just now going into a wheelchair and his exhaustion is starting to really affect daily life. He is no longer working and life is getting slower. He has been having more...- Reef
- Thread
- choking diagnosis exhaustion family feeding feeding tube kids life night website wheelchair
- Replies: 8
- Forum: PEG feeding tube help
-
R
understanding symptoms
Hi My husband has ALS and we are in early stages, he was diagnosed this summer. I am trying to understand and not panic every time something changes.... He has a lot of twitching that seems to travel in different parts of his body. Initial symptoms started in his throat, slurry voice etc. We...- Reef
- Thread
- advice als caffeine diagnosed early information stages stiffness symptom symptoms travel twitching voice
- Replies: 2
- Forum: General discussion about ALS/MND
-
R
Neuraltus ALS drug wins fast track, orphan status
A little more good news.... An experimental treatment for Lou Gehrig’s disease won fast track and orphan drug designations from the Food and Drug Administration, potentially speeding the drug’s development by Neuraltus Pharmaceuticals Inc...- Reef
- Thread
- als als research clinical clinical trial drugs food research treatment
- Replies: 6
- Forum: Research and trials
-
R
What questions to ask about symptoms
Hi This is my first entry. I have been reading your posts since December. My husband received an official ALS diagnosis this June. We have 5 kids from 15 to four months old. Our Care Coordinator who met with us recently suggested I keep a journal of "symptoms" to keep track of what is going on...- Reef
- Thread
- als arm book diagnosis kids questions reading running speech stiffness stress symptom symptoms voice weakness worries
- Replies: 14
- Forum: Current caregivers