Search results for query: *

Thank you for the feedback. Sometimes it all gets so overwhelming. I know that my body is not the one with the disease but I feel like the disease has got it's hold on all of us and some days it just hurts so much it's hard to breathe.

Hi All It's been so long since I's posted here. My husband is coming upon his 2 year "diagnosis" anniversary and we are just now going into a wheelchair and his exhaustion is starting to really affect daily life. He is no longer working and life is getting slower. He has been having more...

Hi My husband has ALS and we are in early stages, he was diagnosed this summer. I am trying to understand and not panic every time something changes.... He has a lot of twitching that seems to travel in different parts of his body. Initial symptoms started in his throat, slurry voice etc. We...

Neuraltus ALS drug wins fast track, orphan status from yesterday's San Francisco Business Times here is the link: Neuraltus ALS drug wins fast track, orphan status - San Francisco Business Times

A little more good news.... An experimental treatment for Lou Gehrig’s disease won fast track and orphan drug designations from the Food and Drug Administration, potentially speeding the drug’s development by Neuraltus Pharmaceuticals Inc...

Thank you - Thank you all. It's such a generous thing to do, to guide and relive the experience for yet another newcomer. We have been lucky to have been in contact with our local ALS chapter and they did send someone for a home visit. She was lovely but I couldn't help but feel like I was...

Thanks Katie - we plan on doing it all together! How could anyone do this alone? It's just too much. We will go to our first clinic appointment in September so I will be armed with the notebook. I hope there won't be too many entries. There is so much to hope and wish and pray for with this...

Thank you - the shock of an ALS diagnosis and the subsequent education you get from reading everything and anything you can and yet you're still left with so many questions.... I appreciate you taking the time to answer me. I don't always know how to communicate my questions yet. It's still...

Hi This is my first entry. I have been reading your posts since December. My husband received an official ALS diagnosis this June. We have 5 kids from 15 to four months old. Our Care Coordinator who met with us recently suggested I keep a journal of "symptoms" to keep track of what is going on...