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I want to see all research that is proposed, funded, who is funding it & how much $$, unfunded, underway, etc in one place. You can get a lot of information by digging through about a dozen different websites, but has anyone made an effort to put it all together in one place and get...

I read an article posted today.. so I'm wondering if this is truly new research or if this website just happened to post some old news. In part: Our studies demonstrate that glial cells carrying a SOD1 human mutation have a direct effect on motor neuron survival and provide a powerful tool for...

I've heard from so many people that want to help others with ALS directly. While I'm involved in fundraising for the ALS Association, I thought there was also a need to connect people with ALS with people who want to help with specific needs: equipment, software, adaptive devices, ramps, a van...

Hello, Has anyone with an Erika Eye Gaze system tried accessing a macintosh remotely (over the internet) using Logmein.com ? I don't see why it wouldn't work. My friend Patrick is in a nursing home stuck with an Erika & is unable to continue video editing work on his film...

I am starting to have slight problems with my tongue.. nothing too major, but I'd like to start voice banking. I know thousands of people have headed down this path before & I'm sure many have wished they had recorded something they hadn't thought about. Is anyone aware of a list of most...

I'd be interested in hearing from others with young kids. What types of activities are you able to do to keep your kiddos entertained? My children are 4 & 6. While I'm still pretty mobile (cane or walker in the house, wheelchair out of the house), I tire very easily. I'm also new to...

Hi all, It's been a while since I've posted to the forum. I was received an ALS diagnosis about a month ago. I have a question regarding fever. About two weeks ago I really overexerted myself & did way more walking than I had in a very long time. Immediately after that I developed a fever...

I have upper motor neuron disease at this point plus some sort of myopathy, presumed to be metabolic. I have been told by OHSU & the Cleveland Clinic that these are separate & unrelated. I understand this is very rare & I find very little literature on this occuring. Thought I'd check to...

I'm wondering how many people with an ALS diagnosis had fasciculations before atrophy. I'm in the PLS/Possible ALS stage with clear upper motor neuron involvement & some lower motor neuron involvement seen in a biopsy. I have widespread fasciculations that have developed & progressed in the...

Does anyone have any info / photos showing pectoral atrophy? Over the past few weeks I've noticed my pec muscle on my left side is smaller than the right. It's like my left breast doesn't extend down as far as my right.. there's sort of a very slight dent where the right breast continues down...