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the forum named "do I have ALS" has a simple well-intentioned name. Advancements in search engine technology now allow typing every day English ( or other) questions into the Search box and away you go. Top of the list – that forum. I'm suggesting a new name and including a poll.

I'm sick of hearing it. You know my voice is weak, if you're asking a question take the time to listen for the answer. Don't make me repeat myself.

I've got a dress high toileting sling by Invacare that rarely seems comfortable. At times it is crushing my chest, making breathing more difficult on my bottom is slipping lower while the leg straps start rising to my knees. Anybody else have one of these? Any suggestions? Thanks.

I would appreciate any suggestions on what to do with my arms while sleeping. I can't move them. And after a while my shoulders and elbows get sore. I've got pillows under my elbows but it seems my elbows get drawn in towards my chest while sleeping. Anybody else experiencing this? Any solutions?

To a paid caregiver that says call me if you need me and then leaves the room to go watch television downstairs.I'm tired of having to beg through the baby monitor for water, repositioning, blankets, changing TV channel, etc.

A forum members map is now ready for additional placemarks. This is a continuation of the closed thread "Keeping track of who is from where". The map can be viewed here...

from the local news: Ump won't let disease keep him from marathon game in Quincy - Quincy, MA - The Patriot Ledger

I'm ready to bring back Barry's map with new icons. See the sample here: https://maps.google.com/maps/ms?msid=216054196418195491096.0004cc2ea317d702ad485&msa=0&ll=50.680797,-100.019531&spn=24.629483,56.513672 Feel free to make suggestions and see attached thumbnails for available icons.

something to read: Profile of Avichai Kremer Prize4Life Leader With ALS | Lou Gherig’s Disease | TheBlaze.com

His Mom has ALS from theclicker.today.msnbc.msn.com TLC told us that the show's summer finale, airing July 23, will focus on Mary's illness and her family's reaction to it. The network has not yet decided whether she'll be featured more or less than in the past few seasons of the show.