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  • Users: BeckyW
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  1. B

    Rolling shower chair

    I looking to get a rolling shower chair. Too risky to stand even for a minute. Remodeled my shower and using a commode seat now. Any suggestions out there?
  2. B

    Slings

    I am getting a hoyer type lift. Any suggestion what type of slings is best?
  3. B

    Hospital bed

    We're looking at hospital beds. I'm short and the I will have a small room so don't need a big bed. Any suggestions? What is the best mattress?
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    Bi pap

    I am using my bi pap nightly now. The mask fits well but leaves a sore on my nose. We tried putting guaze on it but it still irratates my nose. I tried a nose pillow mask with a chin holder but my lips are weak and can't seal. Any ideas?
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    Hospice

    Today we signed up for hospice through our VNA. I know this doesn't mean I have six months left but it's hard to grasp I am eligible. My body mass is low and my breathing weak. I eat a little but I get what I need through my peg. I use a bipap at night. My legs are much weaker and right...
  6. B

    ALS bites,

    I had a meltdown today and I hate was this monster is doing to me! My morning went well but this afternoon when Doug was out blowing leaves. I got hungry so I went into the kitchen and spent ten minutes looking something to eat. I bit my lower lip yesterday so it's really sore. I have trouble...
  7. B

    Peg

    I got a peg nearly month ago and it has healed well. Can I soak in my nice big bath tub yet...sure miss it.
  8. B

    Peg

    I got a peg several weeks ago. It has healed well. I really miss soaking in hot bath. How soon can I?
  9. B

    rollx or braun car lifts

    We are looking at mini vans to accomadate my power chair. We have seen a Toyota with a Braun lift that slides into the side door. The Chrystler we saw had a Rollx lift that slides under the floor boards. We live in Vermont and are concerned about ice and snow build up. Any recommendations...
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    Bathroom Remodeling

    We are remodeling a bathroom for my use. I am still able to walk but my arms and hands are weak. I have lost my ability to sing and talk. We want to make the bathroom so I can use it throughtour my journey with ALS. Any suggestions? We had the occupational from the ALS clinic come for...
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