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  • Users: mrd1956
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  1. M

    ALS registry

    Hello: this may be a no-brainer but I wanted to ask anyway. Is it safe to say that most of you would advise joining the ALS registry if indeed you have been diagnosed? Or does it pigeonhole you and possibly disqualify you for later trials that may arise? Thanks very much
  2. M

    L-Serine

    Hi All: Has anyone had any experience with the amino acid L-Serine and its possible relationship with protein misfolding?
  3. M

    Gilenya versus Rasagiline

    Greetings: I need your opinions and input if possible. I have the opportunity to participate in a phase 2 clinical trial in either Gilenya or Rasagiline, and I don't know which one to give the edge to. My neurologist has given the thumbs-up to both. Any suggestions? Thanks very much.
  4. M

    Another Website that May Benefit

    Hello All: I came across the website ALSUntangled.com - Home. It downgraded some therapies which came as no surprise. It gave an up check to coconut oil, so I guess I will continue to ingest that goo. Interestingly enough my neurologist is among the contributors; no I did not hear about it...
  5. M

    Former French Tennis Professional has ALS

    I just read today on the Sports Illustrated website, that former tennis professional, Jerome Golmard was diagnosed with ALS this past January. He was ranked as high as 22 in the world, so he obviously had prowess. This story really hit home, because prior to my own diagnosis of MND in 2010, I...
  6. M

    Rasagiline

    Hello: Is anyone familiar with rasagiline and ALS clinical trials?
  7. M

    sodium chlorite

    Hi All: Has anyone out there taken sodium chlorite for ALS/ MND and if so how did you fare? MrD 1956 PS. There is an ALS walk in San Diego 10/21. See you there!
  8. M

    ALS or Its Variants and Metals

    Hello Fellow Members: Do any of you know whether or not there may be any connection between ALS ( or a variant of it ) and titanium? Thanks for your time. Mr D 1956
  9. M

    PMA becoming ALS

    Hello Good People::p I was recently diagnosed with PMA at the Mayo Clinic in Scottsdale. All of this was subsequent to various neurologists theorizing that I had ALS, Kennedy's Disease or BAD. My question is: have any of you had your PMA become ALS? What is the likelihood of this happening...
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