Search results for query: *

Hello: this may be a no-brainer but I wanted to ask anyway. Is it safe to say that most of you would advise joining the ALS registry if indeed you have been diagnosed? Or does it pigeonhole you and possibly disqualify you for later trials that may arise? Thanks very much

Dear Ulf, I read your post of August 2014 which was very informative. Thank you. I have had ALS for five and a half years as a slow progression. I am very interested in getting on the MS medications you tried. How would you recommend my doing that? I hope you're doing as well as can be...

Fair enough. Thanks for your input.

could the protein mis-folding be the accelerator?

Hi All: Has anyone had any experience with the amino acid L-Serine and its possible relationship with protein misfolding?

having your up checks gives me even more confidence in the site. thanks

I am more interested in other patient's opinion of the website and whether or not it could prove to be of any benefit to them, than to try to ascertain who the doctor is.

Greetings: I need your opinions and input if possible. I have the opportunity to participate in a phase 2 clinical trial in either Gilenya or Rasagiline, and I don't know which one to give the edge to. My neurologist has given the thumbs-up to both. Any suggestions? Thanks very much.

Yellow Fever?

Hello All: I came across the website ALSUntangled.com - Home. It downgraded some therapies which came as no surprise. It gave an up check to coconut oil, so I guess I will continue to ingest that goo. Interestingly enough my neurologist is among the contributors; no I did not hear about it...