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Hi Renee You have come to the right place, I came here in June when we found out that my husband Robert has ALS. He is just starting to show weakness in legs and his showed with the jumping mucles and difficulty in swallowing and speaking, so I can't offer any suggestions as to what works...

Thanks so much for the support and input. I have to say that the new format tossed me for a loop so I am slow to post reply's. But I got it now amazing how such a little change can cause such confusion. LOL. My son is doing pretty good, he did have a change from a Honors Math class to a...

Hello all Well has been a busy few weeks. Saw a Dr for a 2nd opinion like he wanted and got the same answer with much explaination. Dr was great he pointed out that DH was yelling and pretty dowright mean to me and son. Of course he said no not now to meds, but was refered for Pallative...

I am so sorry to hear about the fall. just glad that it seems nothing is broken. As for the eating I totally understand the problem, they want to tase but not use a tube. It does get frustrating caught him eating a raw carrot the other day. I also have noted he is having a hard time getting...

Am interested in joining but can't find it either..

Hang in there thinking of you and DH...

OMG Bless you on your job, working with kids who think they are adults, and kids who just are major kids, growing hormones, and attitued that goes on and on... Is it just me or are the kids in middle school tall. I feel like I am in a high school when I visit my son's middle school. Thank...

Katie I want to thank you for your later post. It never occured to me or more so I did not want to acknowldge it that I will have to make many decisions for him, some even now. Thank you for letting me hear that and even with tears know in my heart I will do what is best for him and...

:-P That is so well said.. Forgot to add I take antidepressants to help with the stuff going on not to mention for pain control. Dr offred DH them today we are going to talk about it and look at which are offered and best for him. Had to do on someone who has long history as a Mental...

katie I wanted to personally thank you for your response. I did have a hard time with Dian na's response. Just can't say more than Thank you so much,,