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You probably already know this but they announced at the ALS walk on Saturday that Bush signed the bill to put ALS on the registry and that there were a large nmber of veterans that have the disease and that all veterans will be covered that have Lou Gehrig's disease. There was a family there...

Wanted to say hello to everyone and let you know we had another family reunion with a new grandchild as we want to keep the tradition even though we lost Dick last July. I found it odd so many people in my circle have or know of someone who has als. Dick's grandfather, Dick, Dick's sister who is...

Hi Everyone, I don't know if you remember me but Dick passed away a year ago on the 15th. We had our family reunion on the 4th of July and he died the 15th. I am so depressed now. This is so much harder than any first holidays I spent without him. I go to his gravesite at least every week to...

Dick passed away July 15th after one year of diagnosed. I want to share my experience with you so you never have to experience what I went thru. I fed Dick breakfast. He went down for a nap and I put his bi-bap on him. He wanted to get up and use the bathroom. He started coughing and then...

As you know Dick passed away on July 15th. I just wanted to share this with you in hopes it may bring some comfort to all of you. On th 13th Dick and I were talking in the bedroom. He had his bi-pap on and we were having a normal conversation when out of no where he said "My Mother and Father...

I just wanted to let all of you know Dick passwed away Saturday morning in the hospital. Assisted suicide and starvation did not come into any of it. He aspirated at home and it went from there. I won't go into details but just please take care of yourselves so you never choke on food. His...

Well, we had our family reunion and it was wonderful. It made Dick so happy and everyone was so loving and caring. Today the hospice social worker came and Dick asked her about assisted suicide. It is legal in Oregon. There is an advocacy group in Portland who will help with it. They locate a...

I have concluded it is best to always be prepared for dying with a will etc., having things in order at any age, but not to prepare because you are given a death sentence. It is no different than death row to me. With 1 to 3 months and a 2nd opinion of 3 months it does not bring any calmness to...

Just wanted to let you know we went for the breathing tests for Dick yesterday and he is 50% less capacity than six months ago. The doctor advised he has between one to three months left. I was trying to deal with six months and hospice, but I am not ready for one to three months. Everyone but...

We saw the pulmonologist today and he told us Dick probably has less than 6 months left. We are going on hospice. He has a very aggressive form of als. I am having such a hard time with all of this. I feel like I am living in an out of body existence. Dick wanted to have his gall stones...