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I need all of you. I feel very alone. I have reached out to so many of my friends and received very little response. My family is concerned but they don't call me to see how I am doing. They call each other. I post things to cheer people up but, truth be told, it is really to cheer myself...

Hello everyone. I received some good news today and wanted to share with all of you. I applied for disability and have been in limbo waiting for some news. Today, my case worker called to let me know I have been approved for SSI payments beginning immediately through presumptive eligibility...

Doctors Orders A woman accompanied her husband to the doctors office. After his checkup, the doctor called the wife into his office alone. He said, "Your husband is suffering from a very severe stress disorder. If you don't do the following, your husband will surely die. Each morning, fix...

Hello everyone. Yesterday, I attended the ALS clinic for the first time. What a group of people! I found this to be a wonderful, uplifting experience. I felt embraced, supported, and completely understood. The respiratory therapist wants to do a sleep apnia (sp?) test due to decreased...

When you occasionally have a really bad day, and you just need to take it out on someone, don't take it out on someone you know, take it out on someone you don't know. Like the time I was sitting at my desk when I remembered a phone call I'd forgotten to make. I found the number and dialed it...

Hello Everyone. I am having a very rough night. My legs are cramping severely and my hamstrings feel like they are being pulled apart. I am on medicine for the cramping but it is not working very well tonight. I start the ALS clinic on the 23rd and I cannot wait. I need relief! Any...

Hello everyone. I posted my diagnosed on 2/27. I saw my neuro again today as I felt things were progressing rapidly. I felt much weaker and therefore wanted to meet with him for a follow up. To make a long story short, I have a new diagnosed of ALS. I am not shocked and then again, I am not...

Hello everyone. I made the decision last week to apply for disability. I have an appointment to see my neuro tomorrow as my symptoms have worsened. My biggest issue right now is the physical issues and also some mental issues. Inability to focus, horrible short term memory, and the emotional...

Hello everyone. Let me start by thanking everyone who responded to my last post. This board is a great source of information and support. Which is why I am here. I deal with issues through writing. It is my way to vent. My way to get it out so I can face it and move on to another day. I...

I have been diagnosed with PLS. The good news is I do not have ALS. At least my neurologist is 85 percent sure it is not ALS. An EMG in three months will give a final diagnosed. I have been looking for a support group all over and never noticed it right under my nose. I don't know what to...