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Hello All, I am personally fairly new to this forum, however I am using my Mom's log in who passed away in 2013 from ALS at 52. She was the 9th person in our family to lose the battle to ALS, we are connected by C9ORF72. I stay very active in research and came across a FALS Registry today, my...

All, My mom (Bhappy) asked that I hop on the forum after she passed and let everyone know. My mom suffered from familial ALS for at least 3.5 years. Her hands were first effected, next her legs and her breathing at the end. Her diaphragm seemed to collapsed within 11 days before she passed away...

I'm walking / possibly riding in the Greater Chicago Walk to Defeat ALS on May 12th, 2012 at Cantigny Park, Wheaton, IL. Is anyone else here on the forum planning to be there?

Hi all! I need your advice. About 2 months ago my feet and toes started swelling. This seems to happen when I walk/stand too much. My GP said to wear compression socks, elevate the feet often and at night, and take one 81mg aspirin a day. Elevating helps the most. My questions: Is there...

Hi All! Today I finally got in for my dex study screening. The case coordinator thought I should qualify for the study! She also said that there are only about 150 people worldwide in the study so far. The initial goal was 800 worldwide. If any of you are interested, there is most likely a...

Hi All! I have a question for all you experts. My clinic doctor wants me to go for a couple of sessions of PT for range of motion exercises. I currently do a full range of exercises, especially ROM and stretching. I would rather hold off using my PT insurance allowance for a time when I really...

Hello All! I was diagnosed in Feb. 2011. A few days later I discovered your forum. I want to start by saying thanks to all of you for helping me understand ALS a bit more. You have also made the future less frightening and helped me to keep a positive attitude. Alas, the name: Bhappy! Thanks