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Today is my Dad's birthday. He would've been 77 today :) He's only been gone for 6 months 11 days & it still all feels like a dream. My Mom & Dad would've celebrate their 53rd wedding anniversary 2 days ago on the 17th so needless to say this week has been a tough one for my Mom :( My brothers...

Sunday, Father's Day~how bittersweet it will be for me. Rant: Missing my Dad tremendously, I haven't yet really mourned him & I feel like I need him now more than ever. Too much personal stuff going on & could use his advice. Rave: My oldest is graduating from high school on Father's Day. I...

Free to a PALS: My Mom has a hospital bed to give away for free. It is an Invacare Model #G5301IVC I did measure the bed & from headboard to footboard it is approx. 7 1/2' & I think about 30" wide. You will need to pick up, you can pm me We will donate to a local ALS chapter if no one wants it :)

It saddens me beyond belief to say that my Dad passed away this morning @ 2:30 I can not believe it has only been about 13 months since his diagnosis. My Dad went to the hospital this past wednesday having a hard time breathing. First thought was pneumonia, turns out he had Ileus which is...

Oh God this is killing me! I flippin' hate ALS! I try so hard not to let this disease take over who I am but how can you not? It is so difficult :mad: My Dad went for his appt on Monday and his FVC is down to 25%. He was at 36% just a month ago. The visiting nurse came in on Tuesday and told my...

My Dad went to have some testing done yesterday to see if he would be able to have the procedure for the NeuRx Diaphragm Pacing System. Well that is a no-go, very disappointing. One of the reasons is his FVC is 36%. Early December he was just below 50% So my question is: What % is getting...

My Dad is going to Brigham & Womens today to be tested for the NeuRx Diaphragm Pacing System. I read the previous thread regarding this (it's now locked) and although I am thankful for all the research that is out there being done, whether it is for ALS or cancer, etc. I just have my doubts if...

I joined this forum a few months ago, "browsing" thru reading a lot of posts. Identifying with some and others not so much. One comment recently I connected with was from trfogey, made me put things in perspective. It was "start fast, go fast, end fast" or "start slow, go slow, end slow" My...

My Dad was recently diagnosed with ALS about 1 month ago. He currently has minimum strength in is left hand & maybe a little more in his leg (he's not dragging his leg constantly although I have notice him doing it a few times). My question is: Is swelling in his hand normal? Every site I have...