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  • Users: JustMe
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  1. J

    Lithium & Rilutek interactions ? ? ?

    Hi - this is a question that came to me, and I suspect it may become important to others as well. Did anyone who is now taking Lithium have any warnings about what they COULD and could NOT take at roughly the same time as the Lithium? As they are both 2X/day meds it would be easier to take...
  2. J

    [B] Using Hospital Beds ? ? [/B]

    Is anyone here using a hospital bed at home? The local ALS society has offered to get me one, and I am going to take them up on it, to put in the remodeled 1st floor handicap apartment that is almost ready, However, the ALS Soc seems unable to supply me or my wife with any information on...
  3. J

    night time urination - how to do it ?

    Greetings: I am looking for info on devices to allow one to urinate during the night. I had been getting up from bed to go to the toilet, but several serious falls made me stop that. For the last few months I have used a urinal ( non-spill device from URSEC in Frace ) but need to go from...
  4. J

    text on site too small - can it be changed to bigger somehow?

    :( I am having more difficlty with my vision as the disease progresses. Reading this site is now VERY difficult because the text is too small. Some websites recently have an adjustment for text size 0 some forums have such an adjustment in the user profile. Is thee aby way I can set something...
  5. J

    Need info on Rilutek use 2 plus years

    Greetings: I posted this over on the PALS section and didn't get much in the way of answers, so I am trying here, I need to know if anyone has any information about the value of Rilutek after two plus years? Back when I started taking it I was told it was known to help some people for six...
  6. J

    Rilutek - how long?

    Hi Folks - It has been a while since I was here. I have a question for everyone. Does anyone know of any reports or research which would give an idea of how long Rilutek continues to help? When I started taking it 2 1/2 years ago it was said it only worked for about six months. More recently...
  7. J

    wheelchairs ? ? ?

    JustMe again - update on house remodeling. After a lot of thought and "discussion" with my wife I have given up the idea of putting in stair lifts to let me get up & down in the town house here. Instead it seems to make more sense to move my bed, computer, books and everything else I need...
  8. J

    anyone know about Stair Lifts ?

    As some of you may know from some earlier posts, I live in a three story town house with two flights of stairs. There is no real option to sell this house and move to a single story one, so I have to find some way to make this work. One possibility - not a good one though - is a stair lift ---...
  9. J

    Flu Vaccine vs. ALS

    OK folks - here is an observation I found to be interesting - wondering if anyone else has had the same effect. Back in about Oct. '05 I was having some ALS symptoms, but no diagnosis at that time. I got my usual Flu shot, and the following day I had a slightly red, swollen, warn-to-the-touch...
  10. J

    Returning to the subject of FINANCING ? ? ?

    OK everyone - that was some interesting information on winches and some other humorous items, but I am REALLY serious about the original question I asked. Has anyone, having reached the point in this disease where moving into a single-story home for ease of movement found ANY kind of help in...
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