Thank you Barbie...I do try and get out. Shoot, just a trip to the grocery store by myself is a joyous occasion. I am one that cherishes my solitude, so this is so tough sometimes. Some days are great, some I'm just so sad I can hardly get going, some I'm just mentally exhausted. I find I drink...
Thank you Jen...May you find peace on this difficult road.
My daughter lives in SD and I am really wanting to spend time with her. Just to take a break. I feel though that I would be worried the whole time and I wouldn't enjoy myself like I would want. Contemplating a trip sounds great though. :)
I wish I could fly away in this very moment to a magical land. One that did require me to take care of a bwk(big wierd kid). When I originally spewed this out to my partner...that I felt like I was caring raising a bwk...it was funny to both him and me. T was diagnosed in 2010, I let this slip...
Thanks to all of you for this warm welcome...I think this will help with my anxiety, just to be able to express what I'm feeling and to have feedback from all of you, who are experiencing this journey as well. I am Happy today so far...:)
Love and peace to all of you...
Hi...I'm new here. I guess I have what 'they' call caregiver burnout?! My significant other, diagnosed in 2010, is the love of my life. I am however extremely weary of this position of caregiver that I have become.
He has limb onset, which affected his arms first...He now needs assistance...
Hi...I would like to introduce myself...My partner of 7 years has been diagnosed with ALS this past Nov...limb onset, already has significant atrophy in both arms. Still trying to process the reality of this dreadful disease. I think it will help to connect with others going through the same...