Hi Kim. I'm sorry for your loss. Noone deserves this disease, or to have a parent affected by it.
Ten days after your mother passed away, I lost my father to what I believe was the same variant of ALS (after his diagnose, he was not in contact with the hospital for many years, so I am uncertain...
Thank you, Tomby and Ann, for reading. It's nice to be able to share my thoughts with others.
I miss him a lot. That said, it's not all bad. I have been prepared for this to happen for many, many years, and in many ways it couldn't have gone better with our relationship than it did the last two...
Thank you Gusflower and Dana!
LizT: Might as well be cautious, but I will ask on then: Have you seen the film A Brief History of Time? It is an amazing film about the scientist Stephen Hawking which I never managed to show my father. I would have liked to, but knew it would have been very...
LizT: Sorry if above question crossed a line. I'm new here, and a bit tired, so I don't always think everything I write all the way through. Also, I'm new here and don't know what types of questions are commonly asked or answered. In other words: Don't answer if you don't want to. By the way, I...
Does your PALS (I know this word and like ih but have never used it before) breathe using a medical ventilator? My father chose not to get one, 7 or 8 years ago, and didn't change his mind.
Joni: Thank you for your kind words!
And moderator, if you are looking, I don't know how to contact you: I mistakingly double posted this, could you please delete the other post with the same title. I don't think I can do this from my account. This post here is the one I want to stay because of...
My father was born July 7th 1947 and died Febuary ninth 2011. Today, Febuary 21st 2011, we gather here at his funeral to say goodbye.
Let me present to you the programme: First, I will say a couple of things. We will sing a psalm. We will hear the Prelude to Bach’s Air — played by the orchestra...
anxiety
back
bedridden
death
diagnosed
disability
early
electric wheelchair
family
father
fingers
goodbye
hope
hours
idiot
information
life
lift
motor neuron disease
movement
mucus
muscles
night
pneumonia
problems
scared
sleep
speech
support
symptoms
tongue
umn
voice
wanted
wheelchair
My father was born July 7th 1947 and died Febuary ninth 2011. Today, Febuary 21st 2011, we gather here at his funeral to say goodbye.
Let me present to you the programme: First, I will say a couple of things. We will sing a psalm. We will hear the Prelude to Bach’s Air — played by the orchestra...
anxiety
back
bedridden
death
diagnosed
disability
early
electric wheelchair
father
fingers
goodbye
hours
idiot
information
life
lift
motor neuron disease
movement
mucus
muscles
night
pneumonia
problems
scared
sleep
speech
support
symptoms
umn
voice
wanted
wheelchair