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  1. D

    Hello Lee, So nice to find you here. I haven't been on this site since last April. I've been...

    Hello Lee, So nice to find you here. I haven't been on this site since last April. I've been looking for you on PLM, but have not seen you posting there. I'm very pleased that you seem to have survived your trache/vent installation. I guess I'll have to keep checking in here to see what's going...
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    Allergy-like symptoms

    I had a serious problem with a runny nose for quite some time. It was most obvious when eating or going to the bathroom. My nose would just run like a faucet. I figured it was related to autonomic nervous system activity. I talked to my pulmonologist at the ALS clinic and he recommended...
  3. D

    clinic update and 2 questions

    On the vans used by public transportation, the lifts have manual backups. I am not sure about private conversions.
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    the headmaster: anyone using it?

    I used a Headmaster for quite a long time--over a year. Neck weakness was among my first symptoms. I usually wore it in my chair or while walking around (while I still could). It was comfortable when properly fitted by OT. I quit using it when I couldn't get it on by myself. I was still...
  5. D

    Bipap and peg placement

    I had PEG done with FVC at 36%. I had no problems. I was out for about 20 minutes. Good luck.
  6. D

    Jokes Thread

    How did the wall get an erection? :?:
  7. D

    non-invasive vent

    If you can't get a Trilogy or similar model,you might want to look into a battery. I have a C 222 rechargeable battery that gives me about six hours of bi-pap time with my AVAPS. If you have a similar machine, you will need a sine wave inverter. That is because the battery is a 12 V battery...
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