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Just an update, my symptoms are still there, coupled now with arthritic type pains and burning sensations that can be anywhere even my tongue and lips, very tight throat on swallowing. . I have got another appointment with the neurologist 7th Feb, BUT she has contacted me saying I gave a low...

Thank you Mike and Laurie, your factual accounts are really very much appreciated and give me the information I need to move forward and to ask the drs the relevant questions. Thank you once again, for your time and patience.

Thank you all for your replies and information I m trying to process things in a rational, calm way while inside I am petrified. My EMG, muscle and nerve conduction test came in as 'normal' (despite twitching for over a year now) and the dr that did it said she could see 'nothing sinister', so...

Thank you Wendy, that has clarified things a little for me. My Neurologist seems very thorough but I was just left wondering how accurate the EMG was if it wasn't done in the exact same place as the fasiculations but you ve answered that for me, thank you. The fasiculations have been ongoing...

Sorry in advance for asking but have seen so many conflicting opinions so need some clarification if possible. Am I correct in the assumption that if you are already suffering with multiple fasiculations that are ALS fasiculations i.e. The muscle is already affected to the point it's...

Update so far is that the chest x-ray was clear, so no Pancoast tumour causing the Horners. My Carotid Artery dopplers were fine so no dissections, sclerosis or aneurysms. I have my MRI this Friday. Symptoms wise, the Horners is still there, Vertigo type symptoms have increased, the...

Have worryingly woken up today with severe muscle pain in both my arms and wrists, both ankles and calves, across my shoulders and neck and pelvis!!! Feels like I ve been hit by a bus :(

Hi, yes now both my General Practitioner who referred me to the Neurologist mentioned ALS and now the Neurologist when ordering all the new tests specifically stated..we have to look into this further as the fasiculations coupled with the altered sensations you have been experiencing could point...

Update. I had my Neurolgy appointment with a very thorough examination by a consultant neurologist as I still have the Horners Syndrome symptoms, coupled with the other symptoms I explained previously and now burning/prickling sensations intermittently anywhere on my skin from scalp to ankles :/...

Thank you for your response Kim.