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  1. brentonjb

    10 Year Journey - Weakness Now Observed?

    Hey Bestfriends & all. I just want to say that I appreciate your replies. For what it's worth, and if I'm being vulnerable for a moment, I think myself (and maybe others) come to communities like these because doctors or doctor's visits aren't perfect - especially when your digesting new or...
  2. brentonjb

    10 Year Journey - Weakness Now Observed?

    Sorry, just some other questions that came to mind. Is clinical weakness subjective? Does it change, or is it ever misdiagnosed? I was curious if the specialist that observed it in my tongue earlier, it possible that if she performed a new clinical, could the result would be different? Might...
  3. brentonjb

    10 Year Journey - Weakness Now Observed?

    Thanks for the prompt replies Nikki & Shiftkicker! They're greatly appreciated. In regard to the neck muscle, that's really helpful feedback. From what I recall, the neuro inserted the needle into the back of my neck (I don't recall where specifically), but it was just one stick/place and left...
  4. brentonjb

    10 Year Journey - Weakness Now Observed?

    Hi Everyone! I was hoping to get some perspective after a neuro appointment and testing earlier. For clarification, I posted here about a decade ago. At that time, I had a really difficult time recovering from jaw surgery (underbite fix and tongue reduction), which also seemingly promoted a...
  5. brentonjb

    Could this be ALS

    Please get a hold of yourself. If you're unable to get yourself together before your appointment, then check yourself into the ER and perhaps than can treat your growing anxiety. Twitching itself is not a symptom of MND. Everyone twitches. Likewise pain, unless we're talking about severe muscle...
  6. brentonjb

    Awesome! Hopefully yours isn't as much of a terror as mine. He's almost 2 years old and still...

    Awesome! Hopefully yours isn't as much of a terror as mine. He's almost 2 years old and still has a ton of puppy in him.
  7. brentonjb

    Just diagnosed with PLS

    I'm sorry to hear about your diagnosis. May I ask how old are you? And what your symptoms (onset or otherwise) might be? Perhaps even what was abnormal about your EMG. There's quite a few of us here playing the waiting game. Fortunately you've joined a great community with a lot of genuine...
  8. brentonjb

    Scientists Create Stable, Self-Renewing Neural Stem Cells

    It's encouraging for sure. Wonder how this applies to the other Stem Cell Clinicals already under way?
  9. brentonjb

    Clinical Research Drug Trial

    What trial is this exactly if you don't mind me asking?
  10. brentonjb

    Update After Appointment

    Thank you the response Alastor. You and your mother will be in my prayers tonight for sure. And yes I have been tested for Lyme via bloodwork/ LP's. It's come back clean. I'm not sure if MS has been completely ruled out or not, as my current doctors are on the wait and see approach. However...
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