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Just wanted to let everyone know my mom passed away today. It has been a rough road but all her suffering is now over. Thanks to everyone here for your support.

mom is progressing so fast. she is now pretty much out of it all the time. she wakes in pain. we are giving her morphine every two hours and sometimes every hour. her breathing is really bad. how much more can she take? i feel helpless, all i can do is keep pumping in the drugs. so sad right now.

My mom is experiencing what dr's and nurses believe is sundowners through the night. She is the sweetest woman during the day, but at night, she is extremely aggitated, her behaviours and mood change and she becomes extremely restless. She did not have any signs of dementia until just recently...

mom has all of a sudden began to progress so quickly. she sits in her lift chair 24/7. she was diagnosed in july 2010. she was doing amazing until november 2011. all of a sudden things sped up. she now cant use her right hand or arm. left hand and arm are almost useless as well. her speech is...

Yesterday mom fell straight back from a standing position. She went back like a log and hit her head hard. We sent her by ambulance to the hospital. Nothing is broken but she has changed so much. She is not able to walk now. She has major muscle cramping on her legs, feet and butt. The only...

hi guys, moms o2 levels keep dropping multiple times each night to as low as 81. we cant get in for bipap for another week. she has bulbar als. how bad is this o2 level? i am very worried. she is extremely restless at night and says she feels trapped in her own body. it is so hard to watch as...

Hi again, i am finding this site to be wonderful and i appreciate all the comments. My next question is in regards to air hunger. My mom isexperiencing some air hunger at night. During the day she says herbreathing just feels shallow. Will the bipap fix this or just prolong her symptoms in...

Hi there, my mom was diagnosed with Bulbar ALS in July 2010. She is experiencing extreme hot flashes. Her body isn't hot nor does she have a temperature. She goes almost into a panic attack when she gets these flashes. Anyone else experience this?