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    moms journey is over.

    Just wanted to let everyone know my mom passed away today. It has been a rough road but all her suffering is now over. Thanks to everyone here for your support.
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    happening so fast

    thanks everyone for your kind words. mom has slipped into a coma-like state. breathing is very difficult to listen too as her lungs are filling with fluid quickly. haldol was started today along with an increase to morphine every hour. this disease is soooo horrible, why does it seem to attack...
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    happening so fast

    mom is progressing so fast. she is now pretty much out of it all the time. she wakes in pain. we are giving her morphine every two hours and sometimes every hour. her breathing is really bad. how much more can she take? i feel helpless, all i can do is keep pumping in the drugs. so sad right now.
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    ALS and sundowners?

    My mom is experiencing what dr's and nurses believe is sundowners through the night. She is the sweetest woman during the day, but at night, she is extremely aggitated, her behaviours and mood change and she becomes extremely restless. She did not have any signs of dementia until just recently...
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    everyone is getting frustrated

    thank you everyone for the replies and words of encouragement. one day at a time.
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    everyone is getting frustrated

    mom has all of a sudden began to progress so quickly. she sits in her lift chair 24/7. she was diagnosed in july 2010. she was doing amazing until november 2011. all of a sudden things sped up. she now cant use her right hand or arm. left hand and arm are almost useless as well. her speech is...
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    O2 levels

    mom just started bipap lastnight. she seems to have slept pretty good. only up a couple times. we were able to see our neurologist when we went to london and she said mom is progressing quiet quickly now and does not expect to see anymore plateaus. that was a hard thing to hear. we are just...
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    Canadian ALS Survey - Canadian Responses Wanted

    i just completed this. thanks for the link.
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    had a great fall

    Thanks for the warm wishes Pam. We are all keeping our fingers crossed.
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    had a great fall

    Yesterday mom fell straight back from a standing position. She went back like a log and hit her head hard. We sent her by ambulance to the hospital. Nothing is broken but she has changed so much. She is not able to walk now. She has major muscle cramping on her legs, feet and butt. The only...
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