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I didn't think the advice given to her applied to me in any way. I don't enjoy feeling crappy, and when I figure out how to pay for the O2, I will get it. I have figured out why I don't post here very often.

Just a thought. Our son is in the military and would like to live closer to be a part of whatever is happening medically with me. Maybe your son would like to also. And...must add this - I've gotten a few sharp comments on here, but the majority have been caring and concerned, and I have no...

I posted a while back about doc wanting me on O2 full time because of sats in the 70s when walking. I have not been diagnosed with anything, and may not ever be. But...I am concerned if I go on O2 now, where do I go from there? Am thinking about using it at night. Hard to know best way to go.

thanks. like I said, I may never know for sure what's happening, but I knew you folks would understand. Thank you -thank you.

I'm sorry - I was so down when I posted, I forgot what I was going to ask :)

I've posted several times; last one was about my EMG results which could'nt rule out early motor neuron disease. I have no diagnosis & I may never get one but at this point it doesn't really matter because my O2 is dropping more often, lower and then longer recovery time to get back to 90%. My...

Patty, that stinks. I am so sorry. That's just not right. J

Patty, so sorry to hear this. I have an idea of part of what you're going through. During my last 6 min. walk, my O2 dropped to 83% and I walk a lot at work. Rheumatologist I saw last Friday said I have to go back to national Jewish (pulmonologists) and see about oxygen. Well I would, but after...

I do have a personal O2 monitor and it is helpful. National Jewish is basically the best in lung disorders around our area. PFTs are okay. My asthma is well controlled and there is no fibrosis in my lungs which is why my doc sent me there in the first place. My first 6 min rehab walk the lowest...

Neuro is sending EMG results to National Jewish (pulmonologists) and at some point, I will have follow up with them. The neuro who did the EMG mentioned she thought an EMG of the diaphragm would be a good idea, but nothing more has been said. Thank you for answering.