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  1. Julie B

    Feeding Issues

    My mom hangs a bag with her formula, and uses the syringe for her meds. She currently consumes one can each of 1.0 and 1.5 Nutren at each meal. The problem is that it takes 2½ hours for each feeding, because she says if she speeds up the drip, she gets reflux. Is there anything that can...
  2. Julie B

    What's next? (from my dad)

    My dad isn't much of a typist and has asked me to write a post for him. My mother (age 75) was diagnosed with bulbar onset in January 2011; her voice began showing signs in April 2010. She is now unable to speak and has had a PEG since June 2011. She is still able to get around without...
  3. Julie B

    It's been a year...

    My mother was diagnosed a year ago with bulbar onset. She has refused to see an ALS specialist, continuing to see only the neurologist who diagnosed her. Even he has not suggested she see a specialist, which is very frustrating for me, as I have gleaned so much information from this forum, and...
  4. Julie B

    Expecting Diagnosis Today

    I'm new to the forum, trying to prepare myself, as we are expecting a diagnosis today, for my mom. She'll be 75 in April. She started showing bulbar symptoms about seven months ago, with the thickening of her speech. The first neurologist told her it was just stress and she should stop...
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