My mom hangs a bag with her formula, and uses the syringe for her meds. She currently consumes one can each of 1.0 and 1.5 Nutren at each meal. The problem is that it takes 2½ hours for each feeding, because she says if she speeds up the drip, she gets reflux.
Is there anything that can...
I want to thank everyone for your replies. I asked my dad if he wanted to tell me something to respond to all of you, but he's a man of few words these days.
He called me last night, obviously in distress. Apparently, my mom was admitted to the hospital for some tests. They live about 90...
My dad isn't much of a typist and has asked me to write a post for him. My mother (age 75) was diagnosed with bulbar onset in January 2011; her voice began showing signs in April 2010. She is now unable to speak and has had a PEG since June 2011. She is still able to get around without...
Thanks, Janice. I appreciate the support. Yes, my parents live alone. Both of them have always been very active; health club, golf, etc. My mother was active until she got her feeding tube, then she just threw in the towel. Her whole existence revolves around that tube. She treats the...
My mother was diagnosed a year ago with bulbar onset. She has refused to see an ALS specialist, continuing to see only the neurologist who diagnosed her. Even he has not suggested she see a specialist, which is very frustrating for me, as I have gleaned so much information from this forum, and...
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I miss the time we used to spend on the phone. We used to talk several times a week, and now it's down to every ten days or so. She doesn't like using the computer program to talk. I've been trying to write her whenever I think of something to share, hoping she'll get in the habit of writing...
I bought her one once, and I doubt she even knows where it is. Every time I go to the store, I look for books that would encourage her to live in the present and trust in God's timing. I live in a small town with limited shopping resources, so I haven't found anything yet. I will take a look...
I so thank you for your words of encouragement. I try to encourage my mom, focusing on the fact that it is early in the disease and on the things she is able to do and enjoy, even if her speech and eating are difficult. While I don't think she's in denial, I do know she's afraid. Not of...
Dear Ann,
I don't know what to do. My mom is struggling so much, each time she learns something new of what's to come. She keeps praying for a heart attack. I've encouraged her to join this forum, and even made her a user ID while I was up visiting in February. But the confirmation email...
I'm doing okay, but I'm really worried about my dad. I spoke with my mom last night. She seems to be handling things well, but my dad is a mess. He's crying all the time, to be expected, but not something we're used to seeing. He has no appetite and has lost about 18 lbs over the last...