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I had purchased a battery pack with 12V auto cable for my bipap. I recently went on a vent. I no longer need the battery pack. It is for the Respironics brand. I used it with a Synchrony . It is compatable with the following machines : * M Series DS100 CPAP Machine * M Series Plus with...

(sorry for the intrusion my canadian PALS) As Washington debates health care reform, I urge you to contact your house representative and senators. We need to spread the word about our medical needs (tragedies) and influence the debate. Below, I have included a copy of an email I sent. Please...

I am getting close to needing a vent. I have read several good threads on vent/not vent but no one has mentioned laryngeal diversion. I ran across this article from MDA:It discusses laryngeal diversion. http://www.als-mda.org/publications/als/als13_5.html#aspiration I was wondering if...

I got a news story done on me concerning my promotion of an Augie's Quest - MDA Gift of Time event. It aired during the prime time 10PM broadcast. (Denver) See story and video: http://www.9news.com/news/local/article.aspx?storyid=109224&catid=222 Jim

I'm looking to purchase a Wheelchair van this summer. I have ALS and require a van that has passenger WC access. I have two small children that require a bench seat in the rear. So, I'm looking for side entry van. I'm looking for a newer van > 2000. Prefer less than 50K miles. My Camry is...

I am going on several trips this summer and although I am still 'walking' I need a wheelchair for long stretches. I have consulted the ALSA and MDA loan closets and they don't have a portable lightweight wheelchair for a loan. I found a few options online that were reasonably priced. Like...

I was honored to be selected for the Muscular Dystrophy Association’s Anyone’s Life Story program for ALS awareness month. Each day for the month of May the MDA ALS website will have a banner telling you about someone with ALS. I encourage you to click the link everyday in the month of May...

Some of you may want to know more about me... I was profiled in the Rocky Mountain News today. ( The Rocky is one of two major papers in Denver.) My wife and I are working on the fundraising committee for an MDA Event in March. This was a way to raise ALS awareness...

I started having an ear ache on Wednesday. The BIPAP seems to irritate it when the 'higher' pressure turns on. Has anyone else experienced this? So I'm wondering whether it is caused by the BIPAP or the irritation is normal when you have an ear ache while using a BIPAP. Jim

I'm sure everyone has seen (and been quoted) the life expectancy statistics for PALS. (i.e. 50% die within three years) I'm wondering whether anyone has access to a more detailed analysis. I would like to know how they vary by age. For example, I'm 41. What is my life expectancy. I know it...