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Hi, Well today was another neuro visit for Larry.Nothing new doc said he is humbled because he doesn't know what is wrong all he can say is MND,He said it could be parts of 4 different diseases,he has another patient very similar to Larry & she has been in contact with NIH so he is seeing she...

My facebook friend Joe College Sr has passed away from ALS very sad His daughter Michelle Ferguson posted today on Facebook .Don't think he was on our forum ,He lived in MD.God Bless you Joe.

Today Larry went to his first neuro visit at the Univ of Il in chicago .this neuro after doing tests in office said he doesn't have ALS ,but thinks it's Myasthenia Gravis .when the resident asked Larry how many fingers he was holding at different spot in front of him, when looking straight ahead...

Hi Well we finally decided to make an ALS clinic appt.Larry has been going to local neuro for 4yrs & all he says is he has both upper & lower motor neuron disease,So we have finally decide to go to ALS clinic maybe they will have a better idea what is going on.Praying it's not ALS but if it is...

Has anyone heard how Linda's husband Lenny is doing? the last she said he was in ICU on a vent.Praying that he is doing ok Sharon

I posted a question on 8-1-09 wanting to know if anyone is using methylcobalamin .maybe it was in the wrong place I put it in the reseach place. Sharon

Hi everyone I'm new to the forum. My husband Larry had the shingles in 1999 & then in 2001 had started having alot of weakness & fatigue went to the doc who did heart studies all normal then he sent us to a neurologist & without even an exam he was told that he didn't have anything wrong.He...