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  1. Will

    Where did u work

    My PALS was a RN.
  2. Will

    Cholesterol and ALS

    His Neurologist weighed in on the side of taking the Statin and the Zetia. He said any side effects of the statins do NOT effect the neurons, only the muscle tissue, which is not the issue in ALS. He saw the arterial inflammation markers, the small particle LDL and the GI absorption tests...
  3. Will

    Cholesterol and ALS

    Thanks for all the comments. I am getting the message to beware of statins. I myself had taken statins for 20 years, and had some aches and pains during that time period. I have weaned myself off, but am still apprehensive about my lipid numbers. My PALS has never taken a statin either...
  4. Will

    Cholesterol and ALS

    My PALS was diagnosed today with Familial Hypercholestoralemia. I have not read much on this forum about ALS and cholesterol. Someone once mentioned it was not an issue. I don't know if that is because ALS is so much more immediate or what. MY PALS is 3 years stable, still can walk, and does...
  5. Will

    Any experience with Scottsdale Mayo?

    My PALS has been using the MDA clinic at Barrow for 3 years, and is very happy with all the services.
  6. Will

    Massage

    Besides supplements, moderate exercise, and diet, my PALS has had a massage every two weeks for the last 3 years.
  7. Will

    That is great BABs....2 nice Cruise trips! Jim is doing great....no change that I can see. The...

    That is great BABs....2 nice Cruise trips! Jim is doing great....no change that I can see. The Docs are puzzled, but we still take it a day at a time. We are stayed home since Oct. (NYC), because we wanted to get some improvements done to our home instead of travel. But we are going to...
  8. Will

    "possible" Diagnosis

    My PALS was diagnosed as "Possible ALS" and three years later it is the same diagnosis with little progression. Hang in there.
  9. Will

    drugs and side effects

    Yes this is a high dose (although Docs give up to 3600 mg/day in Trigeminal Neuralgia situations). Since my PALS had a allergic reaction to Tegretal, Lyrica and newer related drugs are probably not going to work. Our big question is: Does Neurontin act as an antiglutamate inhibitor (like...
  10. Will

    drugs and side effects

    My PALS took Rilutek for 3 years before stopping last month. No difference as far as we can tell. No probenm taking it. He also takes Nuerontin for Tigeminal Neuralgia (2700 mg/day), and that has left he tired and mentally scattered. We are not sure how the Neurontin has affected his ALS, since...
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