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  1. Chase_Corin

    Just got the word from my neurologist

    I remember with my dad's diagnosis we were in Denial for a very long time. Nobody wants to believe it and acceptance take a lot too. Your in a good place knowing where to get medical care and hopefully you have a good support system. The people on this site have been amazing to me and their...
  2. Chase_Corin

    What are you reading? (In memory of Allen (trfogey)

    "Homer's Odyssey: A Fearless Feline Tale, or How I Learned about Love and Life with a Blind Wonder Cat " By Gwen Cooper ONCE IN NINE LIVES, SOMETHING EXTRAORDINARY HAPPENS. The last thing Gwen Cooper wanted was another cat. She already had two, not to mention a phenomenally underpaying job...
  3. Chase_Corin

    A blanket of snow - ALS and dying

    The hardest thing I have ever had to do was to tell the 911 operator that I couldn't do CPR my father had signed a DNR order and it was against his wishes to attempt recessitation. Dad passed away October 31, 2012 3 days short of his 67th Birthday. Dad had let everyone in the family know his...
  4. Chase_Corin

    Am I just too sensitive?

    We had a bit of this issue too. My dad had ALS and mom and I were his caregivers. Mom I noticed sould get very impatient with him, and I talked to her about it because I also saw dad's frustration and emotions when people didn't listen to him. I talked to mom and we agreed that we need toslow...
  5. Chase_Corin

    Book written by ALS patient

    Paralyzed by ALS, Susan Spencer-Wendel Writes Memoir About the Beauty of Living | Healthy Living - Shine from Yahoo! Canada A woman by the name of Susan Spencer has written a book due to be published in March called "Until I say Goodbye: My year of living with Joy" I can't wait to read this book.
  6. Chase_Corin

    what do you do with yourself?

    When dad passed on October 31st, 2012 life changed for me and mom expanentially. For over three years dad had depended on us for anything from helping him lift things at first to him being almost fully dependant on us for his daily upkeep. Since dad passed we have been in a fog, working on all...
  7. Chase_Corin

    Alarm systems

    I am sorry, this might not be helpful but we just had a baby monitor for my dad he could still make enough noise if he was having an issue to alert us. The baby part of the monitor was in his room and the 'walkie talkie' part was wherever my mom and I were so that we could help him. I know every...
  8. Chase_Corin

    Depression

    I am so sorry to hear for your loss, I recently lost my father to ALS but can only imagine the grief your feeling. I know a lot of people don't like to depend on medication but an antidepressant has helped me through this time. I take Efexor, it has helped me a lot, although I have spent a day...
  9. Chase_Corin

    I bring everyone down....

    I had a few frinds like that, thankfully no family members had that reaction. Those friends dissapeared after a while because there were only in the friendship for themselves. I didn't complain all the time or anything about my father but when I did mention my dad's illness they would sigh and...
  10. Chase_Corin

    My dear dad....

    Enrique, ALS is a part of us all.... it's like living through the disease ourselves except though a mirror. My father was diagnosed in 2010 but had been ill before that for a few years. I can only imagine how you feel because each of our experiances is different. My father just passed on...
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