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Rhonda, If you read this on paper rather than a computer screen, you would see the tears on the paper. Oh yes, I've asked, I've been so very angry. I watched my uncle, then my brother go through ALS, and I have absolutely NO misunderstanding about what is going to happen. I wondered how God...

I like the idea of donating what's left over to ALS research. On the down side, my drivers license (issued a few years ago and valid for a long time) says I'm an organ donor. Which was fine then. Not now. I can conjur a number of circumstances where my organs might be harvested (God, I hate...

What are the facts about organ and blood donations by someone with ALS? My neuro said "No." A Google search is not helpful. Is a definitive answer possible? There are serious emotional issues involved, but they may have no medical or scientific basis: Would YOU choose organs for your loved...

Welcome Mike, I had an office in the old Benicia Arsenal HQ until a few years ago. Now I'm a ways NE of you in Vacaville. I'm sure we've met. I looked at your website and you have a lot of innovative ideas about mobility. My diagnosed was last summer, but when it started is anyone's guess...

Al, Congrats, and thanx for sharing the photos. Alan

AL, anyone interested in "more about ALS" should definitely check that website, and especially take the link to the one by Steven Shackel. I learned a few things about a positive attitude that will help me. Thank you for the suggestion. Alan

Nita, If I understand correctly, your mum has ALS, is acting wierd, and you don't know what to do. Right? I'm wierd too. A lot of times I want to run and hide, leave and not come back. I think my family doesn't understand; fersher my friends don't. Your post doesn't give us any idea your...

hboyajian, thanks for the info. I also carry a bag everywhere I go, and no reason I can't include a copy of whatever. Good idea. Sometimes the most logical things escape our attention. And that's why I'm here! Alan

It seems states and countries have different laws, and different forms --- even names for living wills, medical power of attorney, and advanced directives. Our daughter insisted on proper and legal documents as soon as my diagnosis was made. It seems that, unless I keep a copy of my advance...

There's SO much good info in this thread -- about attitudes (my biggest problem), and the idea about a website (wish I'd thought of that), and mobility. In another thread, I said I'd started out with a cane; graduated to Canadian (forearm) crutches, a walker, a rollator (essentially a walker...