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  • Users: AKjo
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  1. AKjo

    Steve Gleason to be featured on NFL Network

    This article tells about a NFL television series that features Steve Gleason. I haven't seen this posted here yet, but I apologize if it is a duplicate that I missed. Looks interesting! Steve Gleason to be featured on NFL Network | New Orleans | The Advocate ? Baton Rouge, LA Steve Gleason...
  2. AKjo

    Energetic young men plan long distance bike ride to promote ALS awareness

    My son, son-in-law, and their friend are going to ride their bicycles from Portland, Oregon to Portland, Maine to increase ALS awareness. They have just started a blog that will chronicle with narrative and photos their tour, and keep us updated on their progress. The blog is linked to the...
  3. AKjo

    BarryG

    Barry According to Barry's facebook page, he lost his battle yesterday morning. So, so sad to lose another hero of the forum. RIP, Barry. WE love you, Jo I tried posting this earlier on his hospital thread, but it disappeared.
  4. AKjo

    Dr. William Lamers, hospice pioneer

    Thought I would share this interesting article in today's paper: Dr. William Lamers Jr. dies at 80; championed modern hospice car
  5. AKjo

    Speaking of weddings...

    On Saturday, Gary and I will be traveling to South Korea with our two boys, daughter, and her husband to celebrate the wedding of our older son to a lovely young lady who he met through a business contact. We are really excited to spend this vacation with the whole family and to experience...
  6. AKjo

    Kind Neighbors

    Not sure if this is the right place to put this! Yesterday our neighbor and her two teenagers swooped down the driveway in her suburban and announced that they were going to mow our yard. I have been feeling overwhelmed with all the house and yard stuff that needs to done - there was such a...
  7. AKjo

    May is ALS Awareness Month in the US

    I put this logo as my facebook profile picture a couple of days ago: I was pleasantly surprised to find my daughter who lives in the Seattle area now has it for her profile also! It is an easy way to get some attention for ALS - so many people don't know anything about it.
  8. AKjo

    ALS Awareness

    Unfortunately there doesn't seem to be much about May being ALS Awareness Month in the media, but there is an exciting event coming up: Why Not Tri - Wasilla Triathlon Note: All proceeds will be donated to the ALS Association Doesn't this just make you all want to book a ticket to Alaska...
  9. AKjo

    An Overdue Introduction

    Hello and thank you to all the forum members - some of you make me laugh and sometimes I cry when I get on here, but I appreciate all the valuable information I have gotten from this site. I read it daily for a couple of months before I joined, and have posted a few times, but here it is two...
  10. AKjo

    How much activity is too much?

    I've been reading your forum since my husband was diagnosed 9/1/2010, and have learned so much from all of you. Sometimes it is scary, but your discussion is "need to know" information that isn't available anywhere else. Gary is still able to walk (with an AFO) and do most things he wants to...
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