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Jim, your positive attitude will take you a long way with accepting and learning to live with a tracheostomy if you decide to go for it. My husband made the decision that he would get a trach "when the time came" shortly after his diagnosis. He wanted to see our adult kids grow and be able...

Jenny, Is your mom on an antidepressant? It might take the edge off and allow her to enjoy living a little more. I know these ideas might be hard for you to discuss with her, but maybe the doc or someone else could approach her with the idea. Does she live at home?

Do you have any old family videos you could watch together? Or - have old photos put on one of those digital frames and she can watch the old memories scroll by all the time. We did that last year and had to order the frame online. It is wonderful and is a conversation starter for all who...

Mary, try adding something like Benefiber to her medications. I give Gary a dose three times a day along with liquid stool softener. He goes regularly every other day. Now this sounds gross, but it works well for us: he "hovers" over pads (or you could use a bedpan) on the bed in a sling...

Hello V, I just read your post about Riluzole. My husband was on it for four+ years without any side effects. He quit taking it when he was trached and put on a ventilator a little over a year ago. I know some folks expect to "tell" the difference when they are on it, but as I understand the...

Becky and Mike, thank you for the information on the compression device. Gary had something similar during a hospitalization, but I like the looks of this one better. Not sure the other contraption was quite for use at home anyway. He has an appointment on Monday and I will be armed with...

Becky, Can you tell me more about that compression contraption in the picture? Did it require a doctor's order to get it? It looks like something Gary could benefit from. Thanks for any information/advice you can offer! Jo

Take it and love it! A sit to stand lift that was loaned to us was a life saver for us. We were able to use it for a couple of years before moving on to hoyer/overhead lift. We've been gifted all sorts of necessary items and also found some great deals on craigslist for others.

Kyleighsmom, I didn't mean to take this away from you at all! Since there hadn't been any other messages, I didn't know if it had worked out for you to get it. I'm guessing he sold it to someone else on another forum since he isn't responding now...

Please let me know if the stand is still available. Would like to purchase it from you.