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  1. L

    seeking info on PBP

    Al and Liz, Thank you. I will look into a local group as well. The visit to the ENT doctor did not provide us with any more help. He told us he has not seen any cases of PBP for awhile. He told us to continue doing what we are doing and if we need him, call. I guess I was expecting him to...
  2. L

    seeking info on PBP

    Al, How do I register on either one of these groups? I really thought this was my support ? I am confused but willing to try and talk to anyone at this point. Thanks Lauretta
  3. L

    seeking info on PBP

    Al, Thanks for your words of encouragement and I will go back and read thru some of the other postings, Its just very hard to read about what could happen down the road. i know for sure I'm a not dealing with this very well. I trying to keep face. Lauretta
  4. L

    seeking info on PBP

    My husband just got diagnosed with PBP and we are trying to find out as much info as possible. Its very hard to understand how this came about and what caused it. He started slurring his words about 1yr ago but was under a lot of stress taking care of his dying mother. After she passed, we...
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