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    Since my last post my husband has finally agreed to home health services - just last week. The...

    Since my last post my husband has finally agreed to home health services - just last week. The first visit went good-he was happy with the nurse and has agreed to two weekly visits to check in on him. Home health also set up a speech therapist to help him learn to swallow better. He is having...
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    Good Morning Phyllis My heart goes out to you and your husband. I have done the same thing you...

    Good Morning Phyllis My heart goes out to you and your husband. I have done the same thing you have been doing - trying to find out everything I can. My husband was in denial about his diagnosis until just a couple months ago. That was SO HARD! But, everyone has their own way of dealing...
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    I have just joined today also. I feel better already. I have spent so many months feeling so...

    I have just joined today also. I feel better already. I have spent so many months feeling so alone that just knowing I have a link to others is a vast improvement! My husband and I are fighters also! We have never had to fight anything like Bulbar ALS, though. Thankfully, my son, who is...
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    Help. My husband was diagnosed with ALS today.

    I feel your pain and anxiety -- a year and a few months after my husbands diagnosis and am still so lost. I have found that there is no clear cut "answer" to "what should I expect". We were told what to expect from my husband's neurologists but to date, none of the things we were told would...
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    Husband diagnosed with Bulbar ALS

    Thank you for answering ---sometimes it's like I'm the only one in the world going through this --I have friends and a very good neighbor that offer help and an ear to listen but sometimes they just don't get it. My husband is very independent ---the thought of asking for help is just beyond...
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    Husband diagnosed with Bulbar ALS

    I am at my wits end. My husband was diagnosed with ALS April of 2009. The disease seems to be progressing so quickly ---I guess we were just totally unprepared for the many, many problems that arise with this disease. He has had a feeding tube (PEG) now for about 6 months. I thought that would...
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