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Suzannah, I too dressed as a hiker for a Halloween party a few years ago. It allowed me to "blend", at a time when I was still very self conscious about my condition. I don't worry about it quite so much now. Being safe and mobile is preferable to being home and missing out on possible fun...

Hi Dancer, I can totally relate. (I'm sure we all can.) It's no fun to begin using assistive devices! On the other hand, it's awesome to be able to maintain some independence, and if a device can help with that, I say go for it with gusto! I don't remember when in my progression I bought my...

Thanks for your thoughts, Billbell, Calypso, and Sharon. Billbell, Thank you for relating your speech therapy experience; I'm just sorry that it was ineffective for you. If you don't mind sharing, what kind of exercises did you do? And do you also have a chronic cough? Calypso, I'm sorry to...

Hi All :) Just wondering if anyone has had any luck with voice strengthening exercises? Also wondering if anyone else is experiencing chronic coughing (especially when speaking)? I've had a cough for about three years now, which all of my doctors believed was allergy related. After a year of...

Deb, My neuro also pushed for the pump and I believe it was because he doesn't believe oral baclofen is very effective. In my case, he was right. Intrathecal baclofen, however, is fantastic! I'm able to do so much more now; I'm more independent and much safer when out in the world. If...

Hi Deb, I second what Craig said about hardly noticing the pump. Even while sleeping, it's no biggie. I requested the pump be placed on my right side because I sleep on my left side; now, I can sleep on either side without any interference with my sleep. (I don't sleep on my stomach, but I...

Hi All :) LouLou, I'm glad you're doing so well with your "Pumpty Dumpty". (Hee hee) I named mine, too; she's Lulu! (Think of it as a misspelled homage!) And I'm impressed that you can ride the recumbent bike for so long...well done! I, too, get some spasticity in my legs. It's from the usual...

Hi all, I just wrote a lengthy reply, but it seems to have disappeared. Argh! I'll try again tomorrow. Lauren:)

Hi Schmutz, TB and Fiona, Schmutz--I generally don't get twitches and I don't know if Baclofen is supposed to help with that particular symptom. I can say that I took oral Baclofen for years, but it never really seemed all that helpful. My neuro thinks that oral Baclofen isn't very effective...

Hi All, I'm not a great contributor to this site, but I truly appreciate those of you who are! You're created a supportive community that's both informative and kind, as well as a forum that often tickles the funny bone! Many thanks! Now it's my turn to make an offering. I'm finally ready to...