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Re: stem cell Hi I haven't visited for a while, my husband has ALS, he was diagnosed 5 years ago, he has a combination of bulbar and upper body progression. He is holding on...... At any rate, he took part in a study a few years ago that wasn't just in Toronto, it was right here in...

Hi, les has never slept well and with the advance of the als it was much worse. not much pain (leg cramps), but mental activity and twitching all night long. he was given sleeping pills to take (ativan) and he used to take one occasionally when it all got too much for him.....but he doesn't...

Hey kim, les and i are just going to sit down to do our will. we always mean to but, since He's been sick i'ts more necessary to do it, but also so much more morbid - you know what i mean? at any rate, tHe respirologist didn't give us tHe best news in tHe world. les won't be working much...

Hi karen, congrats on your move. i Hope it all works out well for you two (and tHe cat). moving in togetHer is sucH an adventure, it gives you sometHing to keep your mind off your troubles and at tHe same time let's you explore eacH otHers' personality (it's amazing How mucH you learn about...

Hey carol we're very happy to Hear tHe Henry got to come home. tHe two of you are in our thoughts and prayers. holly n les

Wow kim i didn't know your history. that's quite a plateful you have. les' mother just called me and i ended up speaking to her for a long time. i try not to tell her too much, but at the same time she has a right to know. to quickly answer your question, les was diagnosed 3 yrs and 5...

Carol we're so happy to hear something positive! les is resting now, but i will tell him that henry is doing better. we will be thinking of you.....you rest as much as you can....continue to stay strong. holly and les

Hi stanly my Husband les went tHrougH a pHase 1 toxicity study for stem cell treatment tHis summer. tHe study was performed to see if anytHing bad would Happen if tHey did it (notHing bad Happened). pHase 2 Hasn't begun, and i don't know tHat it will. we asked tHe doctor today if tHere was...

Hi, les and i aren't from ontario so i don't know what icbo is. there is a walk, roll, wheel for als 5km thing happening here. we got a form in the mail so i'll do it. there is a pledge form to get people signed up for if you do it, so i'll make the rounds at work and through relatives...

Tbear, i read your comment about jumping out of planes. les and i did that a few years ago. it was at thanksgiving. i'm giving thanks that we made it okay. i thought i would like skydiving, but it's not the feeling i wanted. once the chute opens it doesn't seem like you're a bird...