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  1. SueG

    Tobii troubles-. Advice?

    Been leasing Tobii for a month". (Still use IPad with headstick mostly, like now.) getting better at basic typing w it, but very frustrated w fb and email". Built-in apps foor both are useless, so I have to use browser. Requires very fine control, mostly unsuccessful. Is anyone having more luck...
  2. SueG

    Northeast ALS Consortium on Facebook

    Hi friends, The Northeast ALS Consortium has a new Facebook page and is looking for Likes. This is a great resource for info on research and clinical trials, even if you don't live in the northeastern US. If you're on facebook, please check it out! Sue
  3. SueG

    Side vs rear loading minivan- experiences?

    Hi, We are looking at converted minivans for my PWC. What tips do users have on side ramp vs rear ramp? All ideas appreciate!
  4. SueG

    Power chair? Start the process as soon as you can.

    My power chair is finally here! After five-plus months. Delays in getting appt at the wc clinic, delays in coordinating from the wc clinic to the provider, meanwhile my hands tanked so the joystick control originally specified wouldn't work, so I had to be reevaluated, ad the revised chair...
  5. SueG

    Happy Easter!

    To all my forum friends, whatever your beliefs, A very happy Easter toall. Its universal message is a story of disappointment and grief redeemed by renewal, love, hope, and light- something all of us touched by ALS can relate to or hope for. Sending you all hope ad love at Easter, Sue
  6. SueG

    Wheelchair delays-aargh!

    Back in Nov my clinic suggested I start the power chair process. They helped find the local providers and we piced the closest one that had good ALS experience. Found we had to be evaluated at local wc clinic, by this time it was late nov, they said they'd call when they had opening. After a...
  7. SueG

    New to bipap and congested

    Hi all, Started bipap a couple weeks ago,, and have a llot of congestion/sneezing during the day. My guess is just a head cold, but seems to drag on, so just thought I'd ask forum friends for experiences. Thoughts? Thx Sue
  8. SueG

    How does your dog respond?

    Our ten y o standard poodle has always been attached to me , but never a kisser or licker...until lately. Once a day or so, he'll come ad lick my useless hands for several minutes. At first I thought, ewww, but one evening I watched him lick his sore paw,and it hit me that maybe he's trying to...
  9. SueG

    Laptop w power chair

    I need to get a new laptop, and will soon be getting a power chair. Happy w my Dell . Use w headmouse. Want to mount on chair. Ideas?
  10. SueG

    Eyemax frustration, help?,

    Hi all, Speech therapist brought a loaner Dynavox Eyemax to try. We were excited! But after 3 long sessions, I am frustrated. Calibration uneven, then when I get to the screen I can't move cursor reliably, and when I do, t only registers a small proportion of my blinks. Looking for feedback...
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