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  • Users: KC2U2
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  1. KC2U2

    Safe & Sound

    I havent been on in a long time. I just wanted to let everyone know that I am safe from Hurricane Isaac. I evacuated 2 weeks ago to the hospital ...although the doctors dont consider it an evacuation considering I had 3 infections to get rid of....hahahaha. I am safe from the hurricane on the...
  2. KC2U2

    Chills, Fever?

    Ok, anyone have this going on? Kevin will suddenly get chills, chattering teeth for about 35-40 minutes then sweating for about 20 minutes. Then he has a bowel movement....WTH? Tonight he spiked a fever of 101.8 with these symptoms. Can't figure this out....
  3. KC2U2

    Kc2u2 - news update

    Hi, I am Gina, Kevin's wife. On January 30 I took Kev to the hospital because he had been having dizzy spells during the day. By the time the ambulance got him to the ER, he was in respiratory failure. He agreed to be intubated and sedated to have a chest CT scan. It was negative. the next...
  4. KC2U2

    sharing the good news

    watch our story My Changed Life - Kevin and Gina Connell Part 2 on Vimeo
  5. KC2U2

    One year today

    One year ago today the doctor confirmed what I had come to suspect and my prayer life had prepaed me to accept. Living with ALS, today I choose to focus not on what I've lost, but on all that I've gained~ a closer walk with my Jesus, many new friends, appreciation for the simple things, annd the...
  6. KC2U2

    Wedding bells

    Getting ready to head over to Houston for the wedding of our youngest son, Nolan, and his beautuful bride Sarah. Tomorrow he is adopting her son, Sat is the wedding, Sun Astros vs Braves game and home Monday for quarterly clinic visit
  7. KC2U2

    Happy Birthday

    Happy Birthday to my beautiful bride, best friend and most awesome caregiver! I love you Gina(heymom05)!
  8. KC2U2

    Weekend Activities

    Well, this is a weekend I've been looking forward to since the beginning of the year. You may remember the struggle to get my son in the Army stationed close to home, well he arrives in Louisiana tonight and reports to Fort Polk on Tuesday. He'll be about 90 minutes away and able to come in...
  9. KC2U2

    Stem cell trial

    I received a call yesterday from my ALSA patient services rep with news that there is an opportunity to get involved in a stem cell clinical trial going on in the New Orleans area. After a call and some phone screening, I have a visit with the Dr Friday for assessment to see if I qualify for...
  10. KC2U2

    Phase III: Dexpramipexole

    Phase III should be starting within the next 90 days, international & U S study sites are announced near bottom of page Phase 3 Study of Dexpramipexole in ALS - Full Text View - ClinicalTrials.gov
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