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  • Users: KC2U2
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  1. KC2U2

    Newly Diagnosed

    A ALS diagnosis will get you automatic fast track approval for social security disability, that is the good news. the bad newsis that fast track means you will have to be out of work six full months before you receive any payments so consider this when deciding quitting date. also contact your...
  2. KC2U2

    Waiting for registration of Dexpramipexole

    no good news, dexpramapexole not effective
  3. KC2U2

    Surprize!

    Hi, didn't know if i would see any faiiliar faces but good to see some old friends. Just got my Tobii and am getting used to typing with my eyes, everything is going well but it has been an eventful year
  4. KC2U2

    Safe & Sound

    I havent been on in a long time. I just wanted to let everyone know that I am safe from Hurricane Isaac. I evacuated 2 weeks ago to the hospital ...although the doctors dont consider it an evacuation considering I had 3 infections to get rid of....hahahaha. I am safe from the hurricane on the...
  5. KC2U2

    Chills, Fever?

    He is in the rehab hospital after getting his trach, peg and suprapubic catheter
  6. KC2U2

    Chills, Fever?

    Ok, anyone have this going on? Kevin will suddenly get chills, chattering teeth for about 35-40 minutes then sweating for about 20 minutes. Then he has a bowel movement....WTH? Tonight he spiked a fever of 101.8 with these symptoms. Can't figure this out....
  7. KC2U2

    Kc2u2 - news update

    He is doing wonderfully. Shooting for home on teh 29th. He had a MRSA in the trach so that set us back, but the doc thinks we can still make that date. He is doing great and they put him in his wheelchair the other day for about 30 minutes for the first time. He is as crazy as ever and flirts...
  8. KC2U2

    Kc2u2 - news update

    Hi, I am Gina, Kevin's wife. On January 30 I took Kev to the hospital because he had been having dizzy spells during the day. By the time the ambulance got him to the ER, he was in respiratory failure. He agreed to be intubated and sedated to have a chest CT scan. It was negative. the next...
  9. KC2U2

    New to ALS... Any info welcome

    sorry to hear,, welcome to the forum
  10. KC2U2

    sharing the good news

    watch our story My Changed Life - Kevin and Gina Connell Part 2 on Vimeo
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