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    Nutri bag

    Anyone use other than single use of Nutri bag for tube feeding? I am trying to look for option for more environmental friendly and save up some supply cost. I am thinking of 500 ml glass syringe or nutri bottle with food grade plastic but seem no commercial product out there in the market. You...
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    BIPAP A40 heat normal?

    Dears I am not sure if this is normal. We bought this machine BIPAP PhilipRespironic A40 in June 19, after annual maintenance In June this year I heard a weez sound and then we end up need to change blower in July. I doubted why the calibrate could not detect it. Recently i felt heat on the...
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    Hypertension with increasing heart beat

    hi all Are there anybody here experience hypertension and increasing in heart beat in advance state of als ? My mum has been suffer with ALS for 11 years and now she has severe hypertension 190/109 and heart rate range from 90+ to 130 bpm. both the blood pressure and heart beat are swing...
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    Breathing Muscle weaken issue

    Hi all. My mom 70 y/o has been diagnosed with als for 1.5 years. From dec. Last year she start experienced shortness of breath and upnto now she puffs at most postures except lay flat down on her back. She seldom use her bipap as if she lay down it seem her breeth is normal for her so she refuse...
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    BIPAP question

    Hi all My mom was als diagnoised in Sep 2010. She is limb onset follow with balbar symptoms,difficult swollowing, choke occasionally, slur speach but so far she is still doing ok. However recently she feels tired and shortness of breath especially when doing things e.g. She has hard time for...
    • set me free
    • Thread
    • advice als back bipap breathing choke free fvc movement muscle night onset problem ramp respiratory shortness of breath symptoms trial vpap
    • Replies: 8
    • Forum: General discussion about ALS/MND
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    Cramp

    Just want to share not sure if you guy already know about it My mum (68 y/o) has ALS diagnosised 6 months ago and she always gets cramp on her legs and it's very painful and last for days. One day one of her friend told her to press on her hallax toe right after she feel the cramp start but she...
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    why blood work after EMG point to ALS ?

    My mom already diagnosis with ALS last week however in the EMG it concluded that 'the study is suggestive possible MND'. However the doctor still ask for the blood work test. do you know why they need the blood work while the EMG already firmed that ? Thanks
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    Swallowing Assist device ?

    Anybody heard of this device ? is it work for PALS ? just think of other option than PEG.
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