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    Hi Luke no answers , Just the same symptoms that started a couple of years ago and have slowly...

    Hi Luke no answers , Just the same symptoms that started a couple of years ago and have slowly gotten worse, namely breathing troubles that are worsened when lying down, bodywide fasciculation24/7 including the tongue,some stiffness in the fingers and slightly slurred speech. I have not lost any...
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    Progressive bulbar palsy (PBP)

    You my friend are very talented.
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    21 year old male with possible ALS, need help

    Initially I was put on c pap and given a sleep study where it was noted that my episodes of apnea were not of obstructive nature but of a central one and my oxygen saturation dropped due to auto pilot that controls breathing when i fall asleep failing , I have 6-7 hundred arrousels per night...
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    21 year old male with possible ALS, need help

    Your symptoms sound soo much like mine its spooky. I have breathing issues that go back about a year and a half . I was also diagnosed with complex /central sleep apnea the cause is yet unknown. I twitch constantly 24/7 all around the body but mostly around the legs and knees and like you I had...
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    Joelc

    Joel was one of the first people to respond to me on this excellent forum when my compratively insignifcent symptoms started offering support and advice .. A wonderful guy and true inspiration. ..Sleep tight mate x My regards to Tryfogy ,Liz and all the others , hope you are all doing well...
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    Hi Roderick hope you are well , I had a busy Xmas as usual , Have not been on the forum for...

    Hi Roderick hope you are well , I had a busy Xmas as usual , Have not been on the forum for while so its good to hear from you . I hope your symptoms are bearable and that this new(ish) year is a good one for you and family. God bless .. Alex
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    hi roderick :-) not too much has changed for me mate . Still managing to work but no closer to...

    hi roderick :-) not too much has changed for me mate . Still managing to work but no closer to knowing what is causing the constant twitching breathless sensation and speech problems . Due to see my neuro again on november the 1st . I know what you mean about nerves that start to jangle pre...
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    Bulbar questions

    hi hello again to everyone . . Saw this and thought i might be able to offer kathy some words of assistance . Going back to about june and july last year i noticed that my breathing whilst lying down had become laboured and within a month or two my speech had started to lose articulation when...
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    tell me about tongues ...

    yeah they did emg the tongue . . By putting the needle under the chin is how and all they detected was fasciculation . No evidence of anything else :) what an emg cant do is diagnose mnd or als . . What it can do if results come back normal is rule it out . . Yours came back normal and that JUST...
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    tell me about tongues ...

    hi . . Last year i developed some slurred speech and tongue fasciculation recognised by my neuro . . My speech is also lispy and sounds quite similar to what you describe except mine never any different no matter what time of the the day . Here is the good bit . . I dont have als /mnd in any...
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