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  1. llacort

    Bipap needed

    My husband has a BIPAP that he uses for sleep and naps. It was suggested at his latest check up that he have an additional one so that he could use it when sitting watching tv or reading. Our insurance only covers one. I called the ALS Association's loaner closet but they don't believe they have...
  2. llacort

    Caregiver supporters

    Hi All, My husband was diagnosed with ALS Atypical July 9, 2010. This after a year of seeing specialist after specialist. His ALS specialist ordered a neuropsych. We had that done and the doctor suggested I join a caregiver's support group asap. I haven't been able to find one specifically for...
  3. llacort

    ALS clinic as opposed to MDA clinic

    Hi Everyone, My husband, Joe, was diagnosed this past July with ALS. We live in Long Island New York. We went first to Sloan Kettering and than for a second opinion to Columbia Presybeterian and saw Dr. Mitsumoto who we understand is tops in the field. We have been to the center twice so far...
  4. llacort

    ALS and health insurance

    Hi All, I'm not sure I posted here yet. My husband was diagnosed with ALS July 9th of this year. As all of you know, we experienced shock. I think the shock is wearing off now and the reality is setting in. I think the feeling of disbelief will never leave us. I think Joey is handling it...
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