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  1. llacort

    Caregiver supporters

    Hi All, One year and 2 months after my husband's diagnosis. I see a decline over the summer. He was able to drive about 4 months ago and got himself to PT. He would eat out and it would make him feel more normal. After he fell on his face, broke his nose and would up in the emergency room, he...
  2. llacort

    I'm going to crack! My husband has ALS and feel like we are treating him badly. I work full...

    I'm going to crack! My husband has ALS and feel like we are treating him badly. I work full time. Granted when I get home I'm stressed. Get dinner started, do laundry, do the mail blah blah. All he is interested in is is what I haven't done. "Did you water the pots (all 15 of them). He mumbles...
  3. llacort

    Bipap needed

    My husband has a BIPAP that he uses for sleep and naps. It was suggested at his latest check up that he have an additional one so that he could use it when sitting watching tv or reading. Our insurance only covers one. I called the ALS Association's loaner closet but they don't believe they have...
  4. llacort

    Hi All, Need advice on purchasing a bidet and also about a second BIPAP. Joey had his 3 month...

    Hi All, Need advice on purchasing a bidet and also about a second BIPAP. Joey had his 3 month check up yesterday. His breathing is worse. They suggested a second BIPAP in the family room. I work full time so there is no one to transport it from room to room. He can't do it himself. Any one...
  5. llacort

    Bipap lengthens life

    It's great to hear that the BIPAP prolongs life. My husband had his 3 month check up yesterday and it was suggested that he have another BIPAP in the family room. I work full time and he can't transport it from room to room. Was anybody able to get a second BIPAP. The insurance company only...
  6. llacort

    Experience a thrill

    My husband had his 3 month ALS check up yesterday. He is too embarrased to ask but I did when he was in their bathroom. I referring to toileting. He uses baby wipes after a bm but it's not good enough. The nurse suggested a bidet. I would like feedback on which models work best. He also needs...
  7. llacort

    Bipap lengthens life

    I've been looking around the caregiver site and came across the BIPAP issue. I have no ideas about the numbers only that on the first visit to Columbia and a visit to Dr. Mitsumoto, a BIPAP was ordered immediately. My husband was diagnosed July 2010. He was so worn out before the BIPAP he lost...
  8. llacort

    How are you Miss? This is Loretta who became your friend and whose post you replied to that I...

    How are you Miss? This is Loretta who became your friend and whose post you replied to that I sound alot like you. How's it going?
  9. llacort

    Caregiver supporters

    Hi my fellow supporters, I'm not good with navigating around forums, but I'm looking for some friendships and possibly finding someone in my area (Long Island New York) who knows of a good caregiver support group. I know Stoneybrook has one for PALS and their caregivers but my husband (PALS)...
  10. llacort

    Caregiver supporters

    It was so good to read your post. You do sound a lot like me. I would like to keep in touch with you. My husband's diagnosis was close to yours. It hit a nerve when you said the nicer you are, the more the demands. My husband said "I think you're happy when I go to sleep". There is some truth in...
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