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Monday April 16th my husband passed away after a long 3 and 1/2 year battle with this awful disease. He is now in a much better place and will not have to suffer any more. I miss him more than anything in this entire world and feel like I have just lost a huge piece of my life and my little boy...

Hello and thanks for your information, my husband is on a bipap but its our 2nd or 3rd machine and he used nasal pillows for a year but when the pressure gets to 24 they leak a lot. He has a full face mask over nose and mouth as long as we have headgear tight it has just a small leak but at...

Hi and thanks for the message I looked at you pictures of your family and my heart goes out to you, this is an awful journey, I hope you have family and friends to help you through this because that is what you are going to need. As I said we are at the end and I feel it just gets harder and...

Thanks for your kind words, I just don't know how I make it through each day but then it is night time and I figure I will go to sleep to try to start again the next day. Thanks again. Kelly

I have not been on this forum for a while due to our busy life. Someone from this forum said I would get more feedback if I posted here so thanks for that information. I have been caring for my husband for about 2 years now that he has needed a lot of help but he was diagnosed with ALS when our...