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This is very exciting news, and especially so for you, TedH5! I'm sure you'll keep us to speed, about your acceptance into the trial. We'll be eagerly waiting to hear the news! ALL the best- Heidi

Dear rbosse- I hope I don't have to rely on my son (26 years old) as your Mom is needing to rely on you, but I know if it comes to that, he will take care of me without question, as you are doing for your Mom. I'm sure your patience and loving support mean the world to her. You both know...

HI Chief! Didn't know your post was here- didn't mean to ignore you! Thanks for the welcome... I've seen lots of great tips and I'm sure I'll come looking when I need more. The neuro appt was ridiculous.... she had nothing helpful to say at all. Don't know why I bothered, actually. Trying...

The Lyme disease diagnosis is interesting - Dr. Klinghart a well-respected Bellevue physician and researcher, says that ALL chronically ill patients he sees have Lyme involvement. I'm taking anti-microbial drops for the Lyme and several supplements to help my poor digestion/absorption and low...

That GP did an EMG and because he had no experience with other neurological disorders, sent me to a Dr. who specializes i ALS at the GF Strong Rehab clinic in Vancouver. The specialist was surprised that I presented so symmetrically in terms of muscle weakness - especially ankles at that...

Hi Laura- Sorry I took so long to reply, but I didn't see your note until today! Getting to the know the structure of the forum has been a bit of a trick! To answer your questions, my symptoms first became noticeable in the late summer of 2009. I would take my dog out for a walk and had no...

Hi thre- Delighted that you came to REALLY VISIT today... sorry I hadn't accepted this friend request sooner - I didn't see it until today! Cheers, my friend - goo journey to you! Heidi

Hi Noirvault... Thanks for your post - sounds like you have a tough situation there... I understand your acceptance of death - I feel it too. I wanted to comment on you symptoms. I've been doing a lot of research and have had a lot of tests. Have you had any testing done for Lyme disease...

Congratulations! Sounds like you are lucky to have each other... I wish you many more happy years together!

Right on, flower.... I figure, as you do, that quitting is not an option and that as long as I can give something - appreciation, ideas, my love - to anyone, I am useful. Thanks to each of you who read Sam's speech and for allowing it to inspire you. It was sent to me by my friend, Brent, who...