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these supposed ALS symptoms youve had for what, 12 years? If it were ALS, quite frankly, you'd be dead. And loooong dead. If not, you'd have complete paralysis in at least some parts of your body. Has anyone ever explained to you that in order to have ALS you must have multiple medically...

Financial aide, grants and loans make it possible too

I starting taking care of my PALS (my fiance) when I was 24. He died the day after I turned 29. In that time, I started getting gray hair, I smoked, I put on 40lbs, I could hardly ever relax, and i was always tired. And this was only taking care of him for 8 hours a day. I got to go home at the...

It is NOT against the law to have the trach removed. However, a dr MUST do this. You cannot legally. Once a person is on mechanical life support, it is their right to have it removed at any point. Unless the person is not of sound mind to make this decision. Im sorry to put this so bluntly, but...

My fiance lived with ALS for ten years. I was with him the last 4 years of his life. My comment comes from the "other" side... As a caregiver, I saw my honey in emotional pain on a daily basis. This pain was because everyone, including his children, abandoned him because it was too hard for them...

@Sunnyflmom- in my personal, not medical opinion, i would suggest using the trilogy while she sleeps if she is sedated. Yes, those meds can and do affect breathing.

Absolutely beautiful

Absolutely LOVE the stone wall

Oh how I miss our Annie.

Dani- how long has he been on it? If he just started recently, there is a good chance the effects will lesson after a bit. Its pretty common for people to be "knocked out" by it for awhile. Just curious- Why is it bad for him to be in a very deep sleep?