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  • Users: PamB
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  1. P

    My sister is in a better place now.

    I would like to thank all of you who have offered your support either to me or any other person who has encounted this disease by a loved one. My sister Sharon died on Feb 27 and I was there to be with her in her last moments on this earth. It was very peaceful and I am glad I was able to...
  2. P

    My Sister's lungs are filling now

    Hi all, It's been a couple of months since I have written. My sister was having a hard time breathing in Sept and she has made it through the holidays. By pure will on her part. Her daughter is taking care of her now and we have night aids and aids during the day. The hospice nurse called...
  3. P

    MY sister breathing is shallow

    Hi, My sister has had ALS for 2 years and she is totally immobile and she recently lost her ability to make any noises. We are lucky that she has had her voice machine and is proficient at it at the present time. She is very restless at night and has to be positioned many times during the...
  4. P

    Hello, I am new too

    Hi, my name is PamB and I have a sister is who has ALS. I was her only care giver for the past 100 days and now she is visiting her two daughters in California. I have been visiting the site for a couple of months and now I have just gotten the time to write to all of you. You have given me...
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