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It has been 13.5 months that my husband went to heaven. I have to say there were things I was completely unprepared for and did not expect. I was definitely not prepared for the magnitude of change and the adjustment that followed his death. I feel like half of my heart was taken away when he...

I have following supplies I am giving away: about 60 cannulas 4' in length, some filters for cough assist, humidifier bottle for oxygen concentrator, "trap"- this is a piece that prevents clogging of tubing with water when the humidifier is in place. 1 piece of 50' oxygen tubing. All of the...

I am selling a cough assist. I would like $1,200 for it. I will pay for shipping costs in the continental US. It's an Emerson manual model.

My husband passed away in June at the age of 42 after a life long fight with various diseases. We were married for 13 years. I just turned 40 and realized that all of my friends are at least seven years older than I am and most are fifteen to twenty years older than me. I only have two friends...

Hello everybody, my husband passed away on 6/16. I have to say, the last six months were difficult. I had been a caregiver for over thirteen years and I had gone past my breaking point day in and day out for all those years. About ten people have told me how worn out and old I look in the past...

BBC News - Most locked-in patients 'happy' I thought this article was extremely encouraging and that it would help some of you PALS or CALS. You may have to copy and paste this in your browser since I am on an Apple and I don't know how to hyperlink it.

So I have been thinking about this a lot and talking to my friends who actually understand the place I am in and this is what I came up with. In difficult/life-and-death circumstances there are three groups of people. There are the ones who know how to deal with it, the ones who don't know how...

I had a question about working from home. I am a teacher and things are getting to the point that I may have to leave my job and stay home with my husband. Are any of you able to do a job at home while taking care of your spouse? My husband does not have ALS, he has a very rare immune disorder...

I was wondering if anyone else was experiencing this. I am feeling so guilty to leave home to go to work, grocery shopping, running errands, or even to walk the dogs. My husband tells me all the time how much he loves it when I am home and how much he misses me when I am gone. I almost never do...

Hello, I was wondering about your opinions about this situation. We have two American Hairless Terriers. They are VERY clean compared to other dogs because there is no hair, no ticks, no fleas, and because they have oily skin the dander is minimal. Also they don't drool because they sweat. I...