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  1. N

    New drugs mw151 and mw189! Hope!

    Article discussing 2 drugs starting human trials: A single pill could treat Alzheimer's, Parkinson's AND multiple sclerosis - ALS Research & Treatments - ALS Forums | ALS TDI - ALS Therapy Development Institute Really hope these drugs work to stop so many horrific neurological diseases...
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    Hereditary FTD and ALS

    Hi Roger- This helps! Knowing you can have the test and still not know for sure (only in the positive) wouldn't make much difference. It also helps to hear what it might have been called in earlier years. Sounds like your family has had a tough go with this awful disease- you will be in my...
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    Hereditary FTD and ALS

    Hi there- really struggling to ask this question as I prefer not to know but it will influence my decision to have children. My mom passed last away last August from ALS with FTD. My family history on her side is not great as they werent a close family, but neither of my grandparents had it and...
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    Mom's peaceful passing

    I am sad that I just read this now as I had inquired with the ALS clinic at the university of mn what could be donated to help with research and got no response. My mom passed a month ago and i feel obligated to ask the question why her death can't help in the research to cure this horrific disease.
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    One month tomorrow

    So tomorrow will mark one month since the passing of my mother. I heard from several people that the grief can strike at it's worst sometimes up to 6 months later. Things have been not that bad so far. The 2 days before she died and the day after were the worst. Then I didn't know whether I was...
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    One month tomorrow

    So tomorrow will mark one month since the passing of my mother. I heard from several people that the grief can strike at it's worst sometimes up to 6 months later. Things have been not that bad so far. The 2 days before she died and the day after were the worst. Then I didn't know whether I was...
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    What the end was like

    Thank you so much for this. My mom is in hospice now (as of about a month) and can walk but barely speak, is on a feeding tube and only has use of one hand and that is minimal. As of yesterday she wanted oxygen full time. As of today she stopped having the feedings, claiming constipation but I...
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    A plug for hospice!

    Hi there. Am in MPLS and am to the point where it's time to make that call. Can you give me who you used? I know there are different services to call but knowing that you are having a positive experience with an MN hospice who clearly understands what's required with ALS helps. My mom has a...
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    Mom doesn't want breathing assistance or feeding tube

    Hi again- So my mother has decided that she doesn't want bipap, a trach or a feeding tube. I completely respect/accept this decision as I know thats what I would want. She had a scare on Friday where she aspirated water and it caused her to panic which made breathing even harder. We went to the...
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    Daughter of newly diagnosed ALS patient.

    Thanks for the above posts. The hardest part is feeling like none of my friends can truly understand which leads to feeling very alone. They have all said they will be there for me for whatever I need and I know they mean it but knave a hard time asking for help. Am used to being the one to...
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