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Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

I'm wondering about a new pain med they are starting my brother on - methadone. It's in addition to the oxycodone he is already on, but which isn't relieving all the pain. He will still be taking it AND the methadone. I'm wondering what this indicates, the fact that he now needs the additional...

Hi, I was going to ask a question about eating on a vent. My brother got his trach almost 3 months ago and the feeding tube with it. He has been tested several times and been given the go ahead to have liquids, and a mechanical soft diet. He's had breakfasts for about a week. Now, he is...

Hi, so my brother is back in the nursing home from the hospital. I thought it was going fairly well except now he feels "congested". The RT who has 24 years experience said that it's normal to feel like you can't get a deep breath, that it's the muscles that are weak and cause that sensation...

Ok, so my brother is back in the nursing home from the hospital. I've been looking at all the adaptive type things we can use, but it's kinda confusing in total. He has a computer, and an onscreen keyboard. We're working on getting the text to speech part going, as well as a better mouse or...

see other thread about his trach things....General Discussion About ALS/MND - ALS/MND Support Group Forums It's been kind of a nightmare for him, just the whole thing, with the bipap not working, then getting the trach and then not venting him right away. It's been an ordeal and I hurt for him...

Okay, so the trach adventures are posted under this thread: https://www.alsforums.com/forum/general-discussion-about-als-mnd/14146-horrible-trach-experience-so-far-my-brother.html My brother is still in ICU because of intermittent fevers and they said possible adelectosis (sp?) and they took...

Quick version: He got the trach this morning but they neglected to hook him up to a vent which he wanted but left him gasping for air after the procedure and terrified. Finally got the vent hooked up, now he is on sedation and sleeping; has some blood in his lungs from the procedure, that they...