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  1. liz

    Useful Medicare Links

    What Medicare pays for...... http://www.medicare.gov/Publications/Pubs/pdf/10116.pdf Whether to enroll if you have other insurance.......... http://www.medicareinteractive.org/page2.php?topic=counselor&page=script&slide_id=37...
  2. liz

    St. Peter's ALS Center Announcement

    My husband's employer, Pepsi Bottling Group of Latham, has partnered with the St. Peter's ALS Center in Albany, NY to provide volunteer services to patients of the center. Bonded contractors will build ramps, remodel bathrooms, etc. Folks will landscape or just clean up your yard. Delivery...
  3. liz

    Power scooters

    I'm currently shopping around for a power scooter, possibly getting a loaner from the ALS clinic. I would be interested in hearing people's experiences with different types and brands of scooters, both the pros and cons. I'm particularly interested in hearing about the "portable" scooters...
  4. liz

    Ankle Foot Orthotics

    I will be getting AFOs at my next clinic appointment. Can folks who've used these share a little of their experience. Will I need new shoes? Are they hard to get on/off if you have weak hands? How much do they really help with walking and for how long? Etc.?
  5. liz

    Reality Check

    OK, so I'm one year past diagnosed and haven't asked for help outside of our household. My family lives 7 hours away but my husband has three single, healthy, childless sisters living within 10 miles of our home. We've been trying to get our raised ranch home ready to sell and all we asked for...
  6. liz

    Infractions

    Al, Dave, or Cindy - I would like to know where I can access details about forum infractions which were referenced in a thread that appeared yesterday (since removed). I am happy to follow the forum rules but it became clear to me yesterday that I may not know what all of them are. Thank you...
  7. liz

    Happy Mother's Day!

    Happy Mother's Day! Celebrate being a mom or celebrate having a mom or having had a mom or being married to a mom or somebody who was like a mom to you or............ Liz :)
  8. liz

    Marvision

    Has anyone here heard of or tried Marvision? This was highlighted on a recent local news show because its inventor, whose mom died from ALS, is from our area. It is some sort of a method for communication for those who are paralysed/cannot speak and involves somehow pointing at pictures to...
  9. liz

    Quinine in the News

    Hi all - I caught a blurb on the news last night and found a news article this a.m. stating the FDA is taking several unapproved products containing quinine off the market and warning doctors and consumers not to use it for leg cramps (an off-lable use) due to health risks (cardiac, I think)...
  10. liz

    Voice Recognition Software

    Hi PALS - I have to get some sort of voice recognition software for work to save wear and tear on what's left of my hands. Need to be able to type letters and memos, create and use tables, email, use internet, Microsoft Publisher and Excel, hopefully play the occassional game of Solitaire, and...
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