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Today is my birthday and I feel so alone. Even my dad did not remember. He is old and has an excuse, but my two sisters could have reminded him. Seems as though he had me helping him get a card for my brother last month (that would be the brother that does nothing to help us care for my him)...

Today at a doctor appointment was the first time I have actually had to say the word, "widow", aloud. The receptionist was reviewing the chart and asked for emergency contact person. When I gave you a new contact, she asked about my marital status. For some reason, it hit me and the tears...

Today was my first Christmas in 43 years without my loving husband. He lost his battle with ALS in August. I have to say this has been one of the hardest days of my life. I do not believe that I have ever felt so alone. I couldn't face the large family gathering so I had a quiet lunch with...

It has been two months since my husband lost his battle with ALS. I still have that lingering question of what happened to end his life so quickly. Yes, he had been diagnosed for a little over 2 years and I know he was ill longer than that, but he never reached the stages that so many ALS...

It is very difficult to write this post. I am one of the caregivers who has complained about how much ALS changed my life. Well, it has really hit home now. My PALS lost his 2 year 4 month battle on Sunday August 14th. This last week has been filled with all those things associated with...

Last week we talked to our Home Health nurse about moving from home health care to hospice. My husband's neurologist told us in April that she would support the change whenever we were ready. So we talked with the social worker, listened to the differences in the two agencies and decided it...

I just need to vent. I am really at a loss. I am doing okay with the physical demands of taking care of my husband, but the emotional demands have changed me so much that I no longer recognize the person I used to be. I do not think I will ever be the same. I can't see being happy again in...

Just read in my local paper that the state of Alabama spent $93 million on prisoner health care last year. I just briefly researched nursing home care to find that I would have to sell most of our assets and his life insurance to qualify him for Medicaid. Something seems wrong with this...

My husband was diagnosed in April 2009 and we have watched his progression. Everything so far has seemed to be a slow process where he slowly loses skills. He had his PEG tube placed on Feb. 17th. The sedation and pain medicine made it a little difficult to regain his ability to stand for...